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Hello Everyone! Sawyer was able to come home last Tuesday. He did not have an appendicitis or intestinal inflammation. They have attributed his fever to neutropenia and sores that developed in his lower GI Tract. He has been on antibiotics and is feeling much better. He’s been playing and enjoying the beautiful weather we have been having. He had a lot of fun celebrating his brother Calvin’s 2nd Birthday. We were able to have our meeting with Sawyer’s stem cell Dr last week. On Tuesday (7/31) he will be having updated Echocardiogram, EKG, and Audiology tests and then Wednesday (8/1) he will have CT and MIBG scans as well as an updated bone marrow aspiration. I never thought in a million years I would speak so matter-of-fact about my child undergoing procedures like this but here we are, this is our life now. As long as everything checks out with his scans and his Drs. are happy with his progress he will be begin his first stem cell treatment on August 8th. He will be given high dose chemotherapy for 7-8 days. A couple of the drugs he has had before but he will have at least 1 new one. They will be in much higher doses then he has had before. After the chemo he will receive his stem cells. He will be very tired and more than likely will develop mouth sores (~90% of kids do) which will require a feeding tube because it will be too painful for him to eat. About 15-17 days after he receives his stem cells his counts will start to recover, and he will start to feel better but for about 3 weeks he is going to be feeling pretty terrible. Please continue to keep Sawyer and our family in your prayers and intentions especially as he begins this part of his treatment. Thank you for your support and for taking the time to read our posts. Until next time!! Jen, Jeremy, Sawyer and Calvin 
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UPDATE: Well we are back at the hospital. Sawyer spiked a 101 fever yesterday (7/19) afternoon and Jeremy brought him in. They are unsure of the cause of the fever. Initially it was thought that he might have an appendicitis or intestinal inflammation but the tests they have done are inconclusive. Right now they are treating his fever and monitoring his abdominal pain. At this point we do not know when he will be discharged. Hello Everyone! Last week Sawyer completed his 6th and final round of chemo!! He was there from Monday to Wednesday and everything went very well. He even got a mini break on Monday. There were quite a few admissions and Sawyer couldn’t get a bed until the afternoon, so he and Mommy got to take a bus ride to Navy Pier to have lunch and ice cream and a little bit of boat watching. Apart from some tiredness Sawyer has been experiencing very few side effects. He’s amazing! We are so proud of him!! As long as he doesn’t have any fevers (fingers crossed) he should not have to be admitted until he starts stem cell treatments. We will be going to the hospital on the 23rd to meet with the stem cell team and go over all the details. On the 31st Sawyer will be going in for the day to have and updated MIBG scan (meta-iodobenzylguanidine), CT scan, and bone marrow aspiration to check his progress. If everything looks good he will begin his first transplant sometime in the beginning of August. As of right now the timeline we have been given for transplant looks something like this: Sawyer will be admitted he will be given medication to prime him for receiving his stem cells for about a week. He will be given his stem cells and will be monitored in the hospital for 3-5 weeks. Then he will be discharged to the local Ronald McDonald house for a couple of weeks. He will return to the hospital for his 2nd transplant which will have the same 4-6 week timeline as the first one he will then go to the Ronald McDonald house for another couple of weeks and then will be discharged home. This is just an overview of the stem cell time line. We will know more Monday and keep you all updated as things progress. As always please continue to keep Sawyer and our family in your prayers and intentions. Thank you for your support and for taking the time to read our posts. Until next time!! Jen, Jeremy, Sawyer and Calvin  |
Sawyer's Parents
We are Jeremy and Jennifer Hunter, the loving parents of Sawyer and Calvin(Sawyer's little brother). We firmly believe that it family always comes first and would like to keep everyone updated through this site and this blog on the treatment and care of Sawyer during his fight against Neuroblastoma. Archives
July 2021
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