Update about Sawyer!/ Stem Cell Meeting

​Hello Everyone!

Sawyer was able to come home last Tuesday.  He did not have an appendicitis or intestinal inflammation.  They have attributed his fever to neutropenia and sores that developed in his lower GI Tract. He has been on antibiotics and is feeling much better.  He’s been playing and enjoying the beautiful weather we have been having.  He had a lot of fun celebrating his brother Calvin’s 2nd Birthday.

We were able to have our meeting with Sawyer’s stem cell Dr last week.  On Tuesday (7/31) he will be having updated Echocardiogram, EKG, and Audiology tests and then Wednesday (8/1) he will have CT and MIBG scans as well as an updated bone marrow aspiration.  I never thought in a million years I would speak so matter-of-fact about my child undergoing procedures like this but here we are, this is our life now.  As long as everything checks out with his scans and his Drs. are happy with his progress he will be begin his first stem cell treatment on August 8th.  He will be given high dose chemotherapy for 7-8 days.  A couple of the drugs he has had before but he will have at least 1 new one.  They will be in much higher doses then he has had before.  After the chemo he will receive his stem cells.  He will be very tired and more than likely will develop mouth sores (~90% of kids do) which will require a feeding tube because it will be too painful for him to eat.  About 15-17 days after he receives his stem cells his counts will start to recover, and he will start to feel better but for about 3 weeks he is going to be feeling pretty terrible. 

Please continue to keep Sawyer and our family in your prayers and intentions especially as he begins this part of his treatment. Thank you for your support and for taking the time to read our posts.
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Until next time!!
Jen, Jeremy, Sawyer and Calvin