Coming to the end...Hopefully?

Hello Everyone! I want to thank all of you for following along with our journey through Sawyer’s treatment. It has not been easy to say the least but I realize I haven’t updated in a while so I wanted to fill in everyone.

Sawyer had his last inpatient stay the last week of August. He did very well. He received the dinutuximab antibody and had the typical side effects like fevers and pain. The staff was so sweet and gave him a wonderful send off. Sawyer is very excited to not have to spend more time in the hospital. He officially completed frontline treatment on October 13th taking his last dose of retinoic acid.


On October 16th and 17th Sawyer had updated CT, MIBG, MRI, Bone Marrow aspiration, Echocardiograph, and EKG. The results were mixed. Sawyer’s central mass along his spine and the masses along his lymph nodes are smaller his Curie score is still stable at a 3. But his CT showed that there were some nodules in his lungs. They cannot determine from the imaging whether the nodules are just an infection like pneumonia or new cancer. They are less than 5 mm each and did not show up on the MIBG but imaging said that at that size they wouldn’t show up on the MIBG even if it was new disease. Therefore, this Wednesday 10/30 Sawyer will have an appointment with IR (Interventional Radiology). They will use real time imaging to extract the necessary nodules and send them for biopsy. We are trying not to get to nervous until we know more but we could use some extra prayers this week.


Thank you all for your love and support! We will update when we know more about the results.

Until Next Time!

Jen, Jeremy, Sawyer, and Calvin